Friday, September 28, 2007
Historically Thursday's and Friday's have presented themselves with bumps in the road for Jack. Each weekend we seem to be experiencing the same things over and over. This week was no exception. He started to take some baby steps forward and ended the week taking a couple of big steps in the opposite direction. Ideally, the physicians would like to see Jack's urine output around two or three ml's per hour. Yesterday he put out 9 ml's the whole day. Consequently Jack does not look like our little baby anymore. He has cauliflower ears and his eyes are swollen shut. All he needs is a singlet and we can throw him in the squared circle. Like I've said before, he is a fighter. They started him back on nitric oxide to help the pulmonary hypertension. He is also on another set of diuretics. His blood pressure has started to sag again probably because he is so dry intravascularly. They are choosing not to give him more fluid to increase the blood pressure because whatever fluid they do give him leaks back into the tissue. He is dealing with two problems that kind of work against each other that really make it difficult for the doctors to treat. The fluid helps to maintain his blood pressure and since Jack can't keep the fluid in his circulatory system it causes him to get more swollen. In essence he has plenty of fluid it is just in the wrong spot. Basically they are sacrificing the lower blood pressure in hopes that his kidneys will start doing their job without a higher blood pressure. On the bright side his heart function looks good and is improving. With the surgery Jack has undergone at such a young age we try not to be surprised that he is having a hard time bouncing back. Today we made the realization that from day one his body didn't get a chance to do normal body things. The first five days he was without much for his kidneys to process, then spent a day on bypass. It is no wonder that he is having a hard time doing the normal baby stuff. We are grateful he is being watched so closely and that he still gets mad when he is bothered by something. Sarah was lucky and got to hold him while they changed his bedding today. I know he couldn't have been blessed with a better mommy. She is doing such a good job.